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ForwardL090823 2023 Neurofibromatosis Symposium
This is a one-day, regional conference to educate and support individuals affected by neurofibromatosis (NF) and their health care community. This symposium is a collaboration of the Minnesota members of the Children's Tumor Foundation Neurofibromatosis Clinic Network: Children's Minnesota, Mayo Clinic, and M Health Fairview and specialists that provide care to individuals with neurofibromatosis types 1 and 2. Speakers include healthcare specialist, educators, and individuals living with NF. We cordially invite you to participate in this day to learn and connect as a community.
This year's conference will offer attendees the option to select if they would like to attend in-person or virtually. Attendees will select their option when they register. There will be limited in-person availability.
REGISTRATION IS CLOSED
Target Audience
Families, patients, physicians, nurses and genetic counselors.
Learning Objectives
- Summarize recent updates on nomenclature and diagnostic criteria for NF1 and NF2-related conditions
- Identify appropriate resources for management of spinal, ophthalmologic, and pregnancy complications in the neurofibromatosis
- Examine the impact of chronic diseases such as NF1 and NF2 on mental health and life experiences of those living with these conditions
2023 Neurofibromatosis Symposium Agenda
| TIME | TOPIC | PRESENTER |
|---|---|---|
| 7:30 - 8:00 a.m. | Registration | |
| 8:00 - 8:10 a.m. | Welcome and Introductions | Dinel Pond, MS, CGC |
| 8:10 - 8:45 a.m. | Primary care for NF1 | Marcelo Vargas, MD |
| 8:45 - 9:15 a.m. | Patient Interview | |
| 9:15 - 10:00 a.m. | Eye Findings and Considerations in NF1 | Catherine Origlieri, MD |
| 10:00 - 10:15 a.m. | Break | |
| 10:15 - 11:00 a.m. | MEK Inhibitors | Vanina Taliercio, MD |
| 11:00 - 11:50 a.m. | Spinal Complications in NF1 | Tenner Guillaume, MD |
| 11:50 - 12:45 p.m. | Lunch | |
| 12:45 - 1:30 p.m. | Chronic Disease and Mental Health | Krista Redlinger-Grosse, PhD, PLLC |
| 1:30 - 2:15 p.m. | Neurofibromatosis: Perinatal considerations (this is a recorded presentation) | Myra Wick, MD, PhD |
| 2:15 - 2:30 p.m. | Break | |
| 2:30 - 3:15 p.m. | NF2 Nomenclature | Radhika Dhamija, MBBS |
| 3:15 - 4:00 p.m. | Pediatric NF2 | Christopher Moertel, MD |
| 4:00 - 4:30 p.m. | Research Updates | |
| 4:40 p.m. | Closing Comments | Amy Lebedoff, MD Dinel Pond, MS, CGC |
Agenda subject to change.
The workshop will be held in the 2nd Floor Education Center. You can access by taking the skyway from 2nd floor of Green parking ramp. Education Center will be on your left hand side after you cross skyway.
Parking: It is asked that you park in the Green Ramp. The entrance to the Green Parking Ramp is off E. 26th Street, west of Chicago Avenue. Please park up on 4th floor and take elevators down to 2nd floor to cross the skyway.
Parking validation stickers will be available at the registration table day of event.
DISCLOSURE STATEMENT:
It is our intent that any potential conflict should be identified openly so that the listeners may form their own judgments about the presentation with the full disclosure of the facts. It is not assumed any potential conflicts will have an adverse impact on these presentations. It remains for the audience to determine whether the speaker’s outside interest may reflect a possible bias, either the exposition or the conclusions presented.
Planning committee members and presenter(s) have disclosed they have no relevant financial relationships with ineligible companies whose primary business is producing, marketing selling re-selling, or distributing healthcare products used by or on patients and have disclosed that no conflict of interest exists with the presentation/educational event.
FACULTY
Tenner Guillaume, MD, Orthopedic Surgery, Gillette Children’s
Christopher Moertel, MD, Hematology and Oncology, Masonic Children’s
Catherine Origlieri, MD, Ophthalmology, Northwest Eye
Krista Redlinger-Grosse, PhD PLLC, Licensed Psychologist and Genetic Counselor, Private Practice
Radhika Dhamija, MBBS, Neurologist, Medical Geneticist, Mayo Clinic
Vanina Taliercio, MD, Dermatology, Fellow in Medical Genetics and Genomics, University of Utah and Primary Children’s Hospital
Marcelo Vargas, MD, Genetics and Genomics, Children’s Minnesota
Myra Wick, MD PhD, Gynecologist and Medical Geneticist, Mayo Clinic
PLANNING COMMITTEE
Amy Lebedoff, MD, Genetics and Genomics, Children’s Minnesota (Course Director)
Dinel Pond, MS CGC, Genetics and Genomics, Children’s Minnesota (Course Director)
Anne Bendel, MD, Pediatric Hematology and Oncology, Children's Minnesota
Brianna Depauw, RN, Hematology and Oncology, Children's Minnesota
Mary Skrypek, MD, Pediatric Hematology and Oncology, Children's Minnesota
Sara Wimmer, RN, Hematology and Oncology, Children's Minnesota
Accreditation Statement:
In support of improving patient care, Children’s Minnesota is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
Children’s Minnesota takes responsibility for the content, quality and scientific interest of its accredited continuing education events.
Credit Statement:
AMA
Children’s Minnesota designates this enduring activity for a maximum of 6.75 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent to their participation in the activity.
ANCC
Children's Minnesota designates this enduring activity for a maximum of 6.75 ANCC nursing contact hour. Nurses should claim only the credit commensurate with the extent of their participation in the activity.
NSGC
This event has been submitted to the National Society of Genetic Counselors (NSGC) for approval of Category 1 CEUs. The American Board of Genetic Counseling (ABGC) accepts CEUs approved by NSGC for purposes of recertification. Approval for the requested CEUs and Contact Hours is currently pending.
This program offers 6.75 contact hours of continuing education. Most medical professional organizations accept AMA PRA Category 1 Credits™. It is the individual’s responsibility to determine whether an education activity meets the continuing education requirements of their respective licensures and/or professional boards. Go to your respective organization’s website for more detailed information regarding credit requirements.
Successful completion of this CME activity, which includes participation in the activity and individual assessment of and feedback to the learner, enables the learner to earn up to 6.75 MOC points in the American Board of Pediatrics’ (ABP) Maintenance of Certification (MOC) program. It is the CME activity provider’s responsibility to submit learner completion information to ACCME for the purpose of granting ABP MOC credit.
Please select the option you would like to attend by clicking in the box at the end of the specific row, then click the ENROLL button to begin.
REGISTRATION CLOSES Wednesday, September 6 AT NOON.
WHEN SELECTING YOUR FORMAT OPTION, SELECT CAREFULLY AS NO TRANSFERS FROM ONE FORMAT TO THE OTHER WILL BE PERMITTED. YOU WILL BE LOCKED INTO YOUR VIEWING OPTION.
Required Hardware/software
If viewing virtually, you will need a computer, phone, or iPad with internet access.