L090823 2023 Neurofibromatosis Symposium

Minneapolis, MN US
September 8, 2023

This is a one-day, regional conference to educate and support individuals affected by neurofibromatosis (NF) and their health care community. This symposium is a collaboration of the Minnesota members of the Children's Tumor Foundation Neurofibromatosis Clinic Network: Children's Minnesota, Mayo Clinic, and M Health Fairview and specialists that provide care to individuals with neurofibromatosis types 1 and 2. Speakers include healthcare specialist, educators, and individuals living with NF. We cordially invite you to participate in this day to learn and connect as a community.

This year's conference will offer attendees the option to select if they would like to attend in-person or virtually. Attendees will select their option when they register. There will be limited in-person availability.



Target Audience

Families, patients, physicians, nurses and genetic counselors.

Learning Objectives

  • Summarize recent updates on nomenclature and diagnostic criteria for NF1 and NF2-related conditions
  • Identify appropriate resources for management of spinal, ophthalmologic, and pregnancy complications in the neurofibromatosis
  • Examine the impact of chronic diseases such as NF1 and NF2 on mental health and life experiences of those living with these conditions
Course summary
Course opens: 
Course expires: 
Event starts: 
09/08/2023 - 8:00am CDT
Event ends: 
09/08/2023 - 4:45pm CDT

2023 Neurofibromatosis Symposium Agenda

7:30 - 8:00 a.m.Registration 
8:00 - 8:10 a.m.Welcome and Introductions 

Dinel Pond, MS, CGC
Amy Lebedoff, MD        

8:10 - 8:45 a.m.Primary care for NF1Marcelo Vargas, MD
8:45 - 9:15 a.m.Patient Interview 
9:15 - 10:00 a.m.Eye Findings and Considerations in NF1Catherine Origlieri, MD
10:00 - 10:15 a.m.Break 
10:15 - 11:00 a.m.MEK InhibitorsVanina Taliercio, MD
11:00 - 11:50 a.m.Spinal Complications in NF1Tenner Guillaume, MD
11:50 - 12:45 p.m.Lunch 
12:45 - 1:30 p.m.Chronic Disease and Mental HealthKrista Redlinger-Grosse, PhD, PLLC
1:30 - 2:15 p.m.Neurofibromatosis: Perinatal considerations (this is a recorded presentation)Myra Wick, MD, PhD
2:15 - 2:30 p.m.Break 
2:30 - 3:15 p.m.NF2 NomenclatureRadhika Dhamija, MBBS
3:15 - 4:00 p.m.Pediatric NF2Christopher Moertel, MD
4:00 - 4:30 p.m.Research Updates 
4:40 p.m.

Closing Comments

Amy Lebedoff, MD
Dinel Pond, MS, CGC

Agenda subject to change.

Children's Minnesota 2nd Floor Education Center
2525 Chicago Avenue South
Minneapolis, MN 55404
United States

The workshop will be held in the 2nd Floor Education Center. You can access by taking the skyway from 2nd floor of Green parking ramp. Education Center will be on your left hand side after you cross skyway.

Parking: It is asked that you park in the Green Ramp. The entrance to the Green Parking Ramp is off E. 26th Street, west of Chicago Avenue. Please park up on 4th floor and take elevators down to 2nd floor to cross the skyway.

Parking validation stickers will be available at the registration table day of event.


It is our intent that any potential conflict should be identified openly so that the listeners may form their own judgments about the presentation with the full disclosure of the facts. It is not assumed any potential conflicts will have an adverse impact on these presentations. It remains for the audience to determine whether the speaker’s outside interest may reflect a possible bias, either the exposition or the conclusions presented.                                                                                                               

Planning committee members and presenter(s) have disclosed they have no relevant financial relationships with ineligible companies whose primary business is producing, marketing selling re-selling, or distributing healthcare products used by or on patients and have disclosed that no conflict of interest exists with the presentation/educational event.


Tenner Guillaume, MD, Orthopedic Surgery, Gillette Children’s 

Christopher Moertel, MD, Hematology and Oncology, Masonic Children’s

Catherine Origlieri, MD, Ophthalmology, Northwest Eye

Krista Redlinger-Grosse, PhD PLLC, Licensed Psychologist and Genetic Counselor, Private Practice

Radhika Dhamija, MBBS, Neurologist, Medical Geneticist, Mayo Clinic 

Vanina Taliercio, MD, Dermatology, Fellow in Medical Genetics and Genomics, University of Utah and Primary Children’s Hospital 

Marcelo Vargas, MD, Genetics and Genomics, Children’s Minnesota  

Myra Wick, MD PhD, Gynecologist and Medical Geneticist, Mayo Clinic 



Amy Lebedoff, MD, Genetics and Genomics, Children’s Minnesota  (Course Director)

Dinel Pond, MS CGC, Genetics and Genomics, Children’s Minnesota (Course Director)

Anne Bendel, MD, Pediatric Hematology and Oncology, Children's Minnesota

Brianna Depauw, RN, Hematology and Oncology, Children's Minnesota

Mary Skrypek, MD, Pediatric Hematology and Oncology, Children's Minnesota

Sara Wimmer, RN, Hematology and Oncology, Children's Minnesota



Accreditation Statement:

In support of improving patient care, Children’s Minnesota is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

Children’s Minnesota takes responsibility for the content, quality and scientific interest of its accredited continuing education events.

Credit Statement:


Children’s Minnesota designates this enduring activity for a maximum of 6.75 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent to their participation in the activity.


Children's Minnesota designates this enduring activity for a maximum of 6.75 ANCC nursing contact hour. Nurses should claim only the credit commensurate with the extent of their participation in the activity.


This event has been submitted to the National Society of Genetic Counselors (NSGC) for approval of Category 1 CEUs. The American Board of Genetic Counseling (ABGC) accepts CEUs approved by NSGC for purposes of recertification. Approval for the requested CEUs and Contact Hours is currently pending.

This program offers 6.75 contact hours of continuing education.  Most medical professional organizations accept AMA PRA Category 1 Credits™.  It is the individual’s responsibility to determine whether an education activity meets the continuing education requirements of their respective licensures and/or professional boards.  Go to your respective organization’s website for more detailed information regarding credit requirements.

Successful completion of this CME activity, which includes participation in the activity and individual assessment of and feedback to the learner, enables the learner to earn up to 6.75 MOC points in the American Board of Pediatrics’ (ABP) Maintenance of Certification (MOC) program. It is the CME activity provider’s responsibility to submit learner completion information to ACCME for the purpose of granting ABP MOC credit.

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Please select the option you would like to attend by clicking in the box at the end of the specific row, then click the ENROLL button to begin.



Required Hardware/software

If viewing virtually, you will need a computer, phone, or iPad with internet access.