
L040926 Virtual DICER1 Registry Symposium and Family Meeting

Join us virtually for the 2026 Registry Symposium and Family Meeting to discuss DICER1 surveillance, testing, and novel approaches. All patients, families, healthcare professionals, and researchers are welcome to join.
This event is free for all patients, families, and professionals not seeking genetic counselor credits.
*If seeking genetic counselor credits, you will select the genetic counselor option at registration. There is a $35 fee payable at the time of registration to cover the fees associated with processing your credits. If you do not pay this fee and you are seeking genetic counselor credits, we will not process these for you.
**If you are using a credit card/payment method that is NOT in your name, please be sure to email [email protected] so that we can make sure to record your payment in our records.
Registration will CLOSE AT THE START OF THE EVENT ON THURSDAY, APRIL 9, 2026
If you have questions regarding the symposium and family meeting, please reach out to [email protected]
If you have questions regarding registration or the learning portal, please reach out to [email protected]
Target Audience
Patients and families affected by a DICER1 variant and/or DICER1-related conditions.
Healthcare professionals and researchers dedicated to improving outcomes for children and adults with DICER1-related conditions.
Learning Objectives
- Share clinical findings in DICER1-related cancers, including updates to DICER1 surveillance guidelines.
- Share updates in DICER1-related laboratory research.
- Provide opportunities for multidisciplinary discussions regarding DICER1 variants and DICER1-related cancers.
*Agenda may be subject to change*
April 9, 2026
| Time | Topic with speaker(s) |
|---|---|
9:00AM – 9:10AM CDT | Welcome |
| Clinical Updates – Knowledge is Power | |
9:10AM – 9:30AM CDT | DICER1: From Bedside to Bench and Back Again with Kris Ann P. Schultz, MD |
9:30AM – 9:50AM CDT | Risk, Detection, and Outcomes of SLCT in DICER1 with Alexander Nelson, MD |
9:50AM – 10:10AM CDT | DICER1: Patient/Parent Perspective with Anna Patterson |
10:10AM - 10:30AM CDT | Genetic Testing in DICER1: Considerations and Strategies with Dinel Pond, MS,CGC |
10:30AM – 10:40AM CDT | BREAK |
| Collaboration Drives Progress | |
10:40AM – 11:00AM CDT | Central Nervous System Sarcomas in DICER1 Syndrome: Clinical Spectrum, Diagnosis, and Management with Rosdali Diaz Coronado, MD, MS |
11:00AM – 11:20AM CDT | Pleuropulmonary Blastoma Not Just Another Embryonic Tumor, But the Archetype of a Family of Neoplasms with Louis P. Dehner, MD |
| 11:20AM- 11:50AM CDT | LUNCH |
11:50AM – 12:10PM CDT | Pathology Pleuropulmonary Blastoma: Questions and Spatial Genomics Approaches to Find Answers with David Huntsman, MD, FRCPC, FCCMG and Damon Olson, MD |
| 12:10PM – 12:30PM CDT | New Treatments for DICER1-driven Cancers with Kenneth Chen, MD |
| 12:30PM – 12:50PM CDT | Charting Therapeutic Vulnerabilities in Rare Cancers with Patient-derived Organoids with Alice Soragni, PhD |
| 12:50PM – 1:00PM CDT | Questions and Roundtable discussion |
DISCLOSURE STATEMENT:
It is our intent that any potential conflict should be identified openly so that the listeners may form their own judgments about the presentation with the full disclosure of the facts. It is not assumed any potential conflicts will have an adverse impact on these presentations. It remains for the audience to determine whether the speaker’s outside interest may reflect a possible bias, either the exposition or the conclusions presented.
The following presenter(s) have disclosed they have/have had a relevant financial relationship with an ineligible company whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients. All of the relevant financial relationships listed for these individuals have been mitigated.
David Huntsman, MD, FRCPC, FCCMG has disclosed that he is an Advisor for Avitia.
Alice Soragni, PhD has disclosed that she had a previous contract with Incyte.
All other planning committee members and presenter(s) have disclosed they have no relevant financial relationships with ineligible companies whose primary business is producing, marketing selling re-selling, or distributing healthcare products used by or on patients and have disclosed that no conflict of interest exists with the presentation/educational event.
FACULTY
Kenneth Chen, MD, Assistant Professor, Department of Pediatrics, Children’s Medical Center Research Institute, University of Texas Southwestern
Rosdali Diaz Coronado, MD, MS, Director of Pediatric Oncology Department, National Institute of Neoplastic Diseases (INEN), National Cancer Institute
Louis P. Dehner, MD, Professor, Pathology & Immunology, Washington University in St. Louis
David Huntsman, MD, FRCPC, FCCMG, BC Cancer, Molecular Oncology Research
Damon Olson, MD, Pediatric Anatomic Pathology, Molecular Pathology, Children’s Minnesota
Alexander Nelson, MD, Internal Medicine Resident, Beth Israel Deaconess Medical Center, Harvard Medical School
Anna Patterson, DICER1 Patient/Parent
Dinel Pond, MS, CGC, Genetic Clinic, Children’s Minnesota
Kris Ann P. Schultz, MD, International PPB/DICER1 & OTST Registries, Cancer and Blood Disorders, Children’s Minnesota
Alice Soragni, PhD, Assistant Professor, Department of Orthopaedic Surgery, Molecular Biology Institute, Cancer and Stem Cell Biology, UCLA Health

Accreditation Statement:
In support of improving patient care, Children’s Minnesota is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
Children’s Minnesota takes responsibility for the content, quality and scientific interest of its accredited continuing education events.
Credit Statement:
AMA
Children’s Minnesota designates this live activity for a maximum of 3.25 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent to their participation in the activity.
ANCC
Children's Minnesota designates this live activity for a maximum of 3.25 ANCC nursing contact hour. Nurses should claim only the credit commensurate with the extent of their participation in the activity.
This program offers 3.25 contact hours of continuing education. Most medical professional organizations accept AMA PRA Category 1 Credits™. It is the individual’s responsibility to determine whether an education activity meets the continuing education requirements of their respective licensures and/or professional boards. Go to your respective organization’s website for more detailed information regarding credit requirements.
Genetic Counselor CEUs: Accreditation information forthcoming
*If seeking genetic counselor credits, there will be a $35 fee payable at the time of registration. If you do not pay this fee and you are seeking genetic counselor credits, we will not process these for you.
THIS EVENT IS FREE for all patients, families, and professionals not seeking genetic counselor credits.
Please select from the options above. Registration will CLOSE AT THE START OF THE EVENT ON THURSDAY, APRIL 9, 2026.
*If seeking genetic counselor credits, there will be a $35 fee payable at the time of registration. If you do not pay this fee and you are seeking genetic counselor credits, we will not process these for you.
**If you are using a credit card/payment method that is NOT in your name, please be sure to email [email protected] so that we can make sure to record your payment in our records.
Required Hardware/software
You will need a computer, phone, or iPad with internet access.

Facebook
X
LinkedIn
Forward